Cure CDKL5 Foundation

Cure CDKL5 is a 501(c)(3) nonprofit organization, established in Spring of 2022 to bring awareness and provide support to individuals, families, friends, caretakers, colleagues, and so many more that are impacted by the rare genetic disorder known as CDLK5 or CDD. 

Cure CDKL5 is led by those directly impacted by the rare genetic disorder, CDKL5, and other invisible disabilities that fail to receive attention and support needed from governmental agencies, pharmaceutical companies, research institutions, and the general public that is need to advance the field of genetics and bring cures into the hands of those we desperately need it.

The Cure CDKL5 Foundation was established in Spring 2022 and has applied for a nonprofit 501(c)3 status. Although nonprofit status approval is still pending, the Cure CDKL5 Foundation was founded to provide support to individuals, families, friends, caretakers, colleagues, organizations, and so many more that are impacted by the rare genetic disorder known as CDLK5 Deficiency Disorder, also known as CDD. 

Cure CDKL5 Foundation is led by those directly impacted by the rare genetic disorder, CDKL5, and other invisible disabilities that fail to receive attention and support needed from governmental agencies, pharmaceutical companies, research institutions, and the general public that is needed to advance the field of genetics and bring cures into the hands of those who desperately need it.